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Jill says I’m obsessed with my hair. That I talk about it every day. Sometimes several times a day. It is just so interesting to me, I guess, that I’m seeing such changes in my hair over such a short period of time. And, it is not only my hair that is doing some weird [...] [...]
After my last Thursday meeting with Dr. Pippas, we’ve circled back around now and I’m on the full 800mg daily dose of Votrient. As I suspected, my quality of life has taken a noticeable hit. The superficial — and easiest to handle — change is that my eyebrows went stark-white within three weeks on Votrient. [...] [...]
I’m so hungry. Like a desperate man roaming in the desert, I’m conjuring perfectly plated dishes of my favorite foods in hallucinatory flashes. Last night I stormed the kitchen. With pure love in my heart, I built a handcrafted fra diavolo sauce. Crushed garlic, San Marzano tomatoes, Vidalia onion, extra virgin olive oil, salt, pepper, [...] [...]
This song from The Shins’ album, “Port of Morrow” just has my number right now. It is speaking to me ’cause I’m just a bit messed up right now. I really wish there was a way to post music on this blog. All my research says there isn’t a way to do it. But, do [...] [...]
Let’s break it all down…down…..down (think echo, here). I’m speaking to you right now from the bottom of a single, deep, oddly-misshapen taste bud from one side or the other of my tongue. The soft, shiny tissue looks innocent enough from this close proximity, but we all know there’s lightening waitin’ to be unleashed if [...] [...]
After taking yesterday’s 800 mg dose of Votrient, I’m exactly half-way through the first month. After the early scare of high blood pressure headaches, another blood pressure control medication was added and I seem to have leveled off to reasonable numbers. No headaches and not checks in the mirror to make sure the top of [...] [...]
With my 800mg dose today, I’m five days into my first month of oral tyrosine kinase inhibitor, Votrient. Thursday afternoon, I was driving down the road near the John B. Amos Cancer Center and because I just didn’t feel right, I whipped in to see if I could get someone to check my blood pressure. [...] [...]
Mid-morning yesterday a styrofoam box arrived, looking like a burial vault that might hold a dead guppy before it was prayed over and dropped into the ground. Or it could be used to ship a nice chunk of cheese, protected from the harsh, hot back end of a UPS truck. I gave it a shake and [...] [...]
I’ve been caught up in a swirling mass of indecision. Frozen in place. Can’t write. Can’t focus. Afraid to look forward. Unwilling to look back. Hung up in the now. It took a dead man with a saxophone to shake me loose. Driving along this morning, heading into town to meet with Dr. Pippas to [...] [...]
One of my regular blog readers from South Africa, who is a LiveStrong team leader sent me the following email last night: “Kindly remove my name from your mailing list. If you don’t have the guts to stand by LiveStrong, I do not wish to hear anything more of you.” So, I’ve removed him from [...] [...]
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