Jill says I’m obsessed with my hair. That I talk about it every day. Sometimes several times a day. It is just so interesting to me, I guess, that I’m seeing such changes in my hair over such a short period of time. And, it is not only my hair that is doing some weird [...] [...]
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After my last Thursday meeting with Dr. Pippas, we’ve circled back around now and I’m on the full 800mg daily dose of Votrient. As I suspected, my quality of life has taken a noticeable hit. The superficial — and easiest to handle — change is that my eyebrows went stark-white within three weeks on Votrient. [...] [...] I’m so hungry. Like a desperate man roaming in the desert, I’m conjuring perfectly plated dishes of my favorite foods in hallucinatory flashes. Last night I stormed the kitchen. With pure love in my heart, I built a handcrafted fra diavolo sauce. Crushed garlic, San Marzano tomatoes, Vidalia onion, extra virgin olive oil, salt, pepper, [...] [...] Let’s break it all down…down…..down (think echo, here). I’m speaking to you right now from the bottom of a single, deep, oddly-misshapen taste bud from one side or the other of my tongue. The soft, shiny tissue looks innocent enough from this close proximity, but we all know there’s lightening waitin’ to be unleashed if [...] [...] With my 800mg dose today, I’m five days into my first month of oral tyrosine kinase inhibitor, Votrient. Thursday afternoon, I was driving down the road near the John B. Amos Cancer Center and because I just didn’t feel right, I whipped in to see if I could get someone to check my blood pressure. [...] [...] I’ve been caught up in a swirling mass of indecision. Frozen in place. Can’t write. Can’t focus. Afraid to look forward. Unwilling to look back. Hung up in the now. It took a dead man with a saxophone to shake me loose. Driving along this morning, heading into town to meet with Dr. Pippas to [...] [...] Dr. George called me right on time this afternoon and we had a 15-minute discussion of our options. First of all, we don’t know the whole story yet about my creatinine level. There is every reason to believe that it will normalize somewhere at or near the 1.8 baseline we had going into the HD-IL2 [...] [...] This is the time where it would be advisable for someone to lock me in a closet for a couple of days. Lock me up and render me unable to type, so I won’t say something stupid and burn a very important medical bridge. Here I sit, feeling like I’ve been dipped in hot french [...] [...] I just got home this afternoon from spending the early part of the weekend with my brother, Eric, at his hunting lease south of Albany, Ga. I went by The Medical Center lab on Thursday morning to get my blood work done and then headed out of town to see Eric. On the way down [...] [...] With the agony of itching a mere distant memory (I lied, despite all the terrific home remedies — and I diligently tried them all — the itching is not only a distant memory, but is so close I can still scratch it!) we’re steeling up to be the “B” side of a human pin cushion [...] [...] |
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