Dr. George called me right on time this afternoon and we had a 15-minute discussion of our options. First of all, we don’t know the whole story yet about my creatinine level. There is every reason to believe that it will normalize somewhere at or near the 1.8 baseline we had going into the HD-IL2 [...] [...]
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This is the time where it would be advisable for someone to lock me in a closet for a couple of days. Lock me up and render me unable to type, so I won’t say something stupid and burn a very important medical bridge. Here I sit, feeling like I’ve been dipped in hot french [...] [...] Good friend, Kate Nerone, sent me this link to a video from The Moth, a show about storytellers that is sometimes featured on NPR. It is the most raw, honest, heart-rending cancer rant I have ever heard. The honest stories that come from people who are hurting and afraid because cancer has come to visit [...] [...] I got a call today from one of the PAs that worked with me last week at Duke. She got the results of my blood tests and she told me that my creatinine hasn’t rebounded close enough to the baseline prior to the first infusion of HD-IL2 and that we’d have to wait until next [...] [...] With the agony of itching a mere distant memory (I lied, despite all the terrific home remedies — and I diligently tried them all — the itching is not only a distant memory, but is so close I can still scratch it!) we’re steeling up to be the “B” side of a human pin cushion [...] [...] Despite what it may look like, I respect the readers of this blog so much that I like to bring something decent to read to the table each time I post. Generally, the lapses in information coming from me means that I’m happy, well and going about my life. Sadly, this is not one of [...] [...] Well, maybe it isn’t over yet. My lab numbers have spun out of control, it appears. My creatinine has shot up to 3.9 and calcium, magnesium and phosphorous are out of whack. I am listless and all I want to do is sleep. I have gained 15 pounds and I generally feel like shit (sorry [...] [...] I write tonight with the bag containing dose number four dripping away above my head and into the PICC line. In spite of the brief bout of nausea and the shake, rattle and roll bit last night, today I have felt great. Although I haven’t looked in the mirror to check it out, I have [...] [...] I have spent untold hours over the past 3.5 years in the infusion suite at the John B. Amos Cancer Center. While all the rest of the crowd has had destruction cloaked in sheep’s clothing dripping into their veins, I was always the pussy over in the corner with water coming down my drip line. [...] [...] We’re settled into our VERY tiny room on the 9th floor at Duke University Hospital. They have taken blood, toured us around the unit and counseled with us about the therapy we’re about to begin and what we can expect. Jill has gone out to buy us a small fan, as the temperature in the [...] [...] |
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