Let’s break it all down…down…..down (think echo, here). I’m speaking to you right now from the bottom of a single, deep, oddly-misshapen taste bud from one side or the other of my tongue. The soft, shiny tissue looks innocent enough from this close proximity, but we all know there’s lightening waitin’ to be unleashed if [...] [...]
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With my 800mg dose today, I’m five days into my first month of oral tyrosine kinase inhibitor, Votrient. Thursday afternoon, I was driving down the road near the John B. Amos Cancer Center and because I just didn’t feel right, I whipped in to see if I could get someone to check my blood pressure. [...] [...] I’ve been caught up in a swirling mass of indecision. Frozen in place. Can’t write. Can’t focus. Afraid to look forward. Unwilling to look back. Hung up in the now. It took a dead man with a saxophone to shake me loose. Driving along this morning, heading into town to meet with Dr. Pippas to [...] [...] Dr. George called me right on time this afternoon and we had a 15-minute discussion of our options. First of all, we don’t know the whole story yet about my creatinine level. There is every reason to believe that it will normalize somewhere at or near the 1.8 baseline we had going into the HD-IL2 [...] [...] We are here in Durham, NC at a Springhill Suites hotel waiting to leave for our first Duke lab work and an appointment with medical oncologist and kidney cancer specialist, Dr. Dan George. One of our sons, Nicholas, is keeping the home fires burning. Callie Sprague (and, of course, Marquette McKnight) are taking care of [...] [...] Just when you thought it was safe to go back in the water…. I got a call from a physician’s assistant in Dr. Lance Pagliaro’s office today. She is part of the team that is responsible for my care at M. D. Anderson Cancer Center. She, along with Dr. Pagliaro and Dr. Christopher Wood as [...] [...] What I do know: • I don’t have tumors in my brain. • I don’t have tumors in my lungs. • I don’t have tumors in my chest, abdomen or pelvis. • I love my wife. What I don’t know: • I don’t know the outcome of my adrenal tumor biopsy. • I don’t know [...] [...] As I look around, there is a sofa, bed, kitchen, TV and other assorted furniture. You’d think I was in a hotel room and you’d be right. In addition to it being a hotel room, it is also a tiny slice of Limboland. We just left our meeting with renowned genitourinary surgeon, Dr. Christopher Wood [...] [...] Friday is the day Dr. Pippas does his administrative work. I don’t know how the man gets everything he has to do…done, even with a Friday to tie up loose ends. Since Friday is his paperwork/research day, I was hoping he’d be able to sandwich in a phone conversation with me about our trip to [...] [...] |
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